Posts Tagged ‘aneurysm awareness

13
Sep
16

JNF Elevates Brain Aneurysm Awareness This September

September is Brain Aneurysm Awareness Month and to help provide insight as well as spread awareness of this condition, The Joe Niekro Foundation™ is sharing daily facts about the brain and brain aneurysms, helpful tips for brain aneurysm survivors, as well as other important information through their social media channels which include Facebook, Twitter, Instagram, Pinterest and Google Plus.

The foundation is also offering a 25% discount on all of their JNF Jewels awareness bracelets and necklaces through the end of the month as well as co-hosting their first annual A Cerebral Affair gala in New York City on September 29th. In addition to their efforts in September, The Joe Niekro Foundation™ will be hosting their annual Knuckleball Gala in Houston, TX on October 20th and their annual Phoenix Knuckleball Gala on November 12th.

Funds raised at the events will go towards brain aneurysm, AVM and hemorrhagic stroke research and awareness supporting The Joe Niekro Foundation’s Patient Advocacy Program as well as the local medical communities.

14
Dec
15

Joe Niekro Foundation Workshop Hits the Mark

JNF shined this weekend at the 1st Annual Facilitators and Administrators workshop. Twenty four JNFMicrovention ambassadors came together for a three day workshop packed with informational, educational and engaging sessions designed to increase the overall knowledge and involvement of our Support Group leaders and hospital partners.

The Joe Niekro Foundation Support Groups and Facebook online forums provide an invaluable resource for brain aneurysm and AVM patients, caregivers and families in the community. Strong facilitation is essential for the sustainability of a support group and the motivational seminar provided the framework to empower our facilitators to be the best leaders they can be.


Me Kim and RobThe group began the weekend with a personal tour of the Microvention Plant where they were able to learn about the latest advancements within the Endovascular industry and had a hands opportunity to witness the coils, stents and flow diverters in the making. Microventions’ founder, Rob Greene wowed the group with a lunch discussion on The History of Coils, while the entire office welcomed JNF to their facilities. Outside of the Microvention tour, the group enjoyed discussions on the various ways to make their group one of the strongest in the country.

Between ice breakers and One Minute Limit challenges, the group shared their successes and learned all that is available to them through the Joe Niekro Foundation™.Team Sparkle

The weekend was truly an opportunity of a lifetime and we are so grateful.  Thanks to all who participated and made it such a memorable time together.
#JNFWorkshop2015.

01
Sep
15

It’s Time to Step Up to the Plate!

Joe Niekro FoundationIn support of Brain Aneurysm Awareness Month, The Joe Niekro Foundation™ (JNF) encourages you to “Step Up to the Plate…and Donate this September.

Step Up to the Plate…and Donate is designed to increase awareness of brain aneurysms and AVMs (Arteriovenous Malformation) through the eyes of survivors, caregivers, friends and families who will be sharing their own stories in attempt to educate the public on the warning signs and risk factors of brain aneurysms and AVMs.

To take the Step Up to the Plate challenge, participants will be directed to the JNF Step Up to the Plate donation page.  Anyone interested in creating their own pledge page, or forming a team where they can share their story with others, provide education to the public and create hope for patients and families across the globe, may also do so.  Funds will benefit brain aneurysm and AVM awareness programs through The Joe Niekro Foundation.

There’s nothing quite as appealing as the sound of the words, “You’ve just won a prize!”  So, to show  support for all efforts, the JNF will be awarding Visa gift cards to the Top 3 earners. First place will receive $750, $350 will go to the 2nd place earner and $100 for 3rd place. *Note, no funds from this campaign will be used for the awarded prizes.

The coin has been tossed, the players are ready and the game has begun so, Step Up to the Plate this month for brain aneurysm and AVM awareness.

It is estimated that 6 million people in the US have a brain aneurysm (1 in 50 people).  Every eighteen minutes an aneurysm ruptures; killing 50% of those victims within minutes. Of the remaining half, 50% will suffer a delayed death and those remaining will usually suffer severe brain deficits.

One in every 200-500 people has a brain AVM; a dangerous, complex tangle of abnormal arteries and veins. Often the AVM ruptures and bleeds, causing severe brain deficits and sometimes death. The peak age for AVM hemorrhage is the late teens (age 15-20), but an AVM can rupture at any age.

“It’s important that we bring awareness to these silent killers and educate the public on the warning signs and risk factors associated with them.  Far too many innocent lives are taken each year as a result of one of these conditions and we are here to help educate others before it’s too late.  Survivors need a platform to share hope with others and we are so fortunate that we are the outlet for them to do so,” says JNF Founder Natalie Niekro.

16
Jul
15

The Knuckle Ball…A Pitch for Life is Heading to Phoenix

Joe Niekro Foundation Knuckle Ball

On October 17th, 2015, athletes from all over the country will come together, in association with The Joe Niekro Foundation and The Society of Neuro-Interventional Surgery Foundation, to support brain aneurysmAVM and hemorrhagic stroke research and awareness, for the 6thAnnual Knuckle Ball…A Pitch for Life at the JW Marriott Resort in Phoenix, AZ.

The black-tie evening, hosted by actress and brain aneurysm survivor, Tamala Jones, will feature a festive reception, silent auction, formal dinner, event program and LIVE auction (plus a few surprises in between).  The gala is the foundation’s largest event of the year and pays tribute to those that have lost their lives to these fatal conditions, while honoring the survivors who are fighting everyday to recover.

We are proud to announce that Petrice “TC” Schuttler will be honored as the Joe Niekro Humanitarian of the Year for her outstanding commitment and contributions to the Phoenix community.  Petrice has devoted her life to improving the lives of others and we are incredibly excited to present her with this year’s award.  The Joe Niekro Foundation Medical Humanitarian of the Year recipient, Joseph Zabramski, MD will be recognized for his research and continued advancements and treatment studies of brain aneurysms, AVMs and hemorrhagic strokes.

Since her father’s tragic and sudden death as a result of a brain aneurysm, Natalie Niekro established The Joe Niekro Foundation, committed to supporting patients and families, research, and treatment of brain aneurysms, AVMs and hemorrhagic strokes. We provide education on the risk factors, causes and treatments of these conditions, while funding the advancement of neurological research.

We would be honored to have you join our efforts and look forward to welcoming you at the 6th Annual Knuckle Ball…A Pitch for Life.

For tickets and package information, visit www.joeniekrofoundation.com/events/knuckleball.

04
Jun
15

Legends of the Game Coming Together to Support JNF

Two decades of baseball champions will come together on June 11th to host World Series Legends, benefitting The Joe Niekro Foundation (JNF). Members of the 1968 and 1984 World Series Detroit Tigers will be at Motor City Casino, in Detroit, Michigan to support brain aneurysmAVM and hemorrhagic stroke research and awareness.

The evening, emceed by sports broadcaster Eli Zaret, will include a cocktail reception, strolling dinner and culminate with a panel discussion including some of the greatest legends of the game: Al Kaline, Willie Horton, Mickey Lolich, Jack Morris, Alan Trammell and Lou Whitaker. Other Tigers guests will include Rick Leach, Scott Lusader, Dan Petry, Dave Rozema, Pat Sheridan, Jon Warden and Pio DiSalvo.

Tiger fans everywhere are invited to attend. Tickets can be purchased online here.

One Champion who will greatly be missed this year is former Tiger and JNF Chairman of the Board, Dave Bergman. Bergman lost his life this past February and to recognize him and his philanthropic efforts, a tribute will be made in his honor during the dinner. “Both Dave and Joe were great friends of mine and I am very glad to be a part of this event and honor their memory”, says Hall of Fame great Al Kaline.

After former Tiger Joe Niekro’s tragic and sudden death in 2006 as a result of a brain aneurysm, his daughter Natalie established The Joe Niekro Foundation, committed to supporting patients and families, research, treatment and awareness of brain aneurysms, AVM’s and hemorrhagic strokes. The foundation strives to raise awareness about the risk factorscauses and treatments of these conditions, while helping support the advancement of neurological research.

Joe Niekro was one of the approximately 30,000 Americans to experience a brain aneurysm that bursts, usually resulting in sudden death. It is estimated that 6 million people in the US have a brain aneurysm, as many as one in 50 people, and every 18 minutes a brain aneurysm ruptures.

World Series Legends promises to be a memorable event, with some of the greatest names in baseball together in one place. The event begins at 5:30pm with a VIP Tiger Legends cocktail reception for premium ticket holders.

Tickets can be purchased at JoeNiekroFoundation.org or call 602-318-1013.

10
May
15

Actress Tamala Jones teams up with JNF for Brain Aneurysm Survivor Model Search

Luxury hat designer, Canada Bliss and Brain Aneurysm Survivor Tamala Jones from the ABC hit show Castle have teamed up with The Joe Niekro Foundation for The Brain Aneusym Survivor Model Search.  We are looking for brain aneurysm, AVM, and hemorrhagic stroke survivors to be featured in an upcoming national campaign for Canada Bliss.

Nearly 17 years after being diagnosed with a ruptured brain aneurysm, Tamala has made it her mission to educate children and young adults on the importance of awareness.  “If I can help one person recognize the symptoms of a brain aneurysm and get help, then I will have made a difference,” she says.  Surviving a swollen and spouted blood vessel at just 23, Jones is a prime example of this medical malfunction not just occurring in “old people.”

The search will deadline June 5, 2015 and winners will be named June 26, 2015.  Entrants must submit a 500 word or less essay about their story plus two photos.  “We are thrilled to be collaborating with Tamala, Canada Bliss and survivors across America.  This is a wonderful testament to survivors everywhere that awareness is beautiful and chic.  What an incredible day it will be when we get to witness these courageous survivors representing a platform that is so vitally important to our mission.  We are honored to be a part of this campaign,” says JNF Founder Natalie Niekro.

Contest is open to men and women 18 years and older in the US and Canada.

01
Sep
14

Don’t be a Chicken!!!

In support of BrDon't be a Chickenain Aneurysm Awareness Month (September), The Joe Niekro Foundation (JNF) encourages you to “Don’t be a Chicken.”

Brave survivors of brain aneurysms/AVMs and hemorrhagic strokes will represent The Joe Niekro Foundation during a month of mini-challenges to bring awareness to the importance of early detection and “Getting Scanned.” Don’t be a Chicken is designed to increase awareness of these devastating conditions by asking survivors, caregivers, friends and families to share their stories in attempt to educate the public on the warning signs and risk factors of a brain aneurysm and what to do if you experience “the worst headache of your life.” Courageous survivors and family members from across the country have come together to educate others on the importance of early detection and will be sharing their stories on the RUChickenJNF You Tube Channel, as well as across the foundation’s social media networks.

Plan to see quite a bit of the campaign’s mascot, “Chuck the Chicken” as the JNF will encourage individuals to make Chuck their Facebook profile picture. Signs of Chuck the Chicken have been created for survivors and supporters to download from the foundation’s website and Facebook page, take their picture with and then upload to social media. Throughout the month, Chuck will introduce new elements of the campaign and new challenges for the followers to participate in.

The Joe Niekro Foundation was founded by Natalie Niekro, daughter of the late knuckleball pitcher Joe Niekro, who lost his life to a brain aneurysm in October 2006. The foundation is committed to supporting patients and aiding in the research, treatment and awareness of Brain Aneurysms, AVMs and Hemorrhagic Strokes. The goal of the JNF is to raise awareness about the risk factors, causes and treatments of these conditions, while helping support the advancement of neurological research.  They provide public education and advocacy, support for patients and families, and develop awareness programs and educational materials for hospitals, clinics and other institutions nationwide.

It is estimated that 6 million people in the US have a brain aneurysm (1 in 50 people). Every eight minutes an aneurysm ruptures; killing 50% of those victims within minutes. Of the remaining half, 50% will suffer a delayed death and those remaining will usually suffer severe brain deficits.

One in every 200-500 people has a brain AVM; a dangerous, complex tangle of abnormal arteries and veins. Often the AVM ruptures and bleeds, causing severe brain deficits and sometimes death. The peak age for AVM hemorrhage is the late teens (age 15-20), but an AVM can rupture at any age.

Hemorrhagic strokes make up about 15% of all strokes, resulting in nearly one quarter of all deaths caused by or related to strokes. Approximately 10-15% of people who have this type of stroke will die before reaching the hospital.

“It’s important that we bring awareness to these silent killers and educate the public on the warning signs and risk factors associated with them. Far too many innocent lives are taken each year as a result of one of these conditions and we are here to help educate others before its too late,” says JNF Founder, Natalie Niekro.

Don’t be a Chicken kicks off September 1st . Follow the results at #RUchicken and #JNF or visit www.joeniekrofoundation.org.

For more information on The Joe Niekro Foundation, contact Natalie Niekro – nniekro@joeniekrofoundation.org.

 




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