Posts Tagged ‘Aneurysm treatment

10
Jan
16

JOE NIEKRO FOUNDATION AWARDS OVER $240,000 TOWARD BRAIN ANEURYSM, AVM AND HEMORRHAGIC STROKE RESEARCH FUNDING

Nationally recognized non-profit, The Joe Niekro Foundation™ has announced the 2015 Joe Niekro Research Grant recipients. A total of $240,000 has been awarded by the foundation, which is committed to supporting patients and families, research, treatment and awareness of brain aneurysms, AVMs and hemorrhagic strokes. “We are honored to be able to collaborate with these amazing recipients and provide them with the critical funding needed to help support the advancements of neurological research,” states JNF Founder, Natalie Niekro.

Barrow Neurological Institute, has received a $160,000 grant for the study Deconstructing the vascular tangle-A molecular biopsy of cerebral arteriovenous malformations, by Joseph Zabramski, MD and Yashar Kalani, MD. This groundbreaking study will aim to understand the pathogenesis of AVM formation and identify signaling pathways involved in vascular development and AVM formation. This is the second grant Barrow has received from The Joe Niekro Foundation™ for this study and provides the funds to cover expenses for the entire 2016 year. “On behalf of all of us at the Barrow, we want to thank you for your appreciation and continued support of this project,” states Dr. Kalani. “We are incredibly grateful to the Joe Niekro Foundation™ for their continued support and ongoing efforts to help make this collaboration a successful one,” claims Joseph Zabramski, MD.

University of Texas has been awarded a $20,224 grant for the project, Application of Machine Learning Techniques to Improve Outcomes after Aneurysmal Subarachnoid Hemorrhage, by Huimahn Alex Choi, MD MS and Jude Savarraj, PhD. The goal of this project is the realization of a machine learning model that will reliably predict the occurrence of delayed cerebral ischemia (DCI) after a Subarachnoid Hemorrhage at least 24 hours before onset, allowing enough time for a meaningful clinical intervention.

A continued partner and collaborator of The Joe Niekro Research Grant, SNIS Foundation was the recipient of a $40,000 grant. This annual grant enables investigators to conduct pilot projects related to brain aneurysms, AVMs or stroke. It is the intention of the grant that the seed data from these projects will indicate feasibility and appropriateness of the research prior to applying for further funding; therefore, emphasis will be placed on research deemed to have the most potential for future funding. “JNF is a wonderful supporter of the SNIS Foundation and we are honored to steward JNF’s resources in innovating and improving care,” says SNIS board member and UCSF Interventional Neuroradiologist, Steven Hetts, MD.

Other 2015 grant recipients included:
Crouse Hospital – Syracuse, NY
St. Joseph’s Hospital – Phoenix, AZ
Child Legacy International – Boerne, TX
Houston Methodist Hospital – Houston, TX

Since inception, the Joe Niekro Foundation has awarded over $1,00,000 in research funding and has built a patient advocacy network that expands across the globe. The foundation provides education on the causes, risk factors and treatments of these conditions, while funding the advancement of neurological research.

Click here to view the list of previously funded projects.

For more information about funding opportunities including program guidelines and contacts, visit http://www.joeniekrofoundation.com/research-grants/grant-guidelines.

 

Advertisements
01
Aug
15

Questions to Ask AFTER Surgery

Now that you are through your surgery and ready for your first post-op appointment, here are a few questions you will want to be sure and ask:

  • What possible side effects should I look for after treatment?
  • What are the signs of infection?
  • What do I do about constipation?
  • What kind of timeframe am I looking at for recovery?
  • Is it possible to completely recover from treatment of a Brain aneurysm/AVM/Stroke?
  • What activities am I allowed to do?
  • What medications am I allowed to take?
  • Am I permitted to drive?
  • Can I drink alcohol?
  • Can I have sex and when?
  • Can I dye my hair?
  • What other types of doctors do you recommend I see? Do I need to schedule an appointment with a Neurologist, Neurophysiologist, Neuropsychiatrist?
  • How can I help myself recover?
  • Who do I call if I have questions about how I am feeling?
  • Will there be any follow-up after treatment?
  • I am nervous about the hardware that will be used to treat my brain aneurysm; if I bump my head will the coils/clips come undone?
  • What is DVT (deep vein thrombosis)? What are the symptoms?
  • Am I allowed to leave the country?
  • Can I fly in an airplane?
  • Are there support groups available?

Remember that no question is a bad question – so ask whatever you need to put your mind at ease, comfort your heart and walk away feeling some sense of relief.

07
Apr
15

Swedish Medical Center Testing New Brain Aneurysm Treatment Technology

Joe Niekro Foundation Medical Advisory Board Member, Dr. Donald Frei of Swedish Medical Center, is leading the study of an investigation device called WEB to treat brain aneurysms. Swedish is one of the 20 sites across the country doing trials on this new technology.

The device is already approved in Europe, and doctors just put it into the first patient in Colorado.

“Brain Aneurysms are deadly, and if we can come up with better and safer and more effective ways of treating brain aneurysms, we absolutely should do that,” said Dr. Don Frei with Radiology Imaging Associates.

The new technology is a tiny metal mesh sphere that expands inside the artery to seal of the aneurysm. It  is a revolutionary treatment for challenging ruptured and unruptured aneurysms. The initiation of the WEB study represents an important milestone for this exciting technology platform and a critical step towards improving outcomes in a patient population with significant unmet needs.

The idea — if blood can’t get in, it can’t rupture.

“We have no idea if this device is going to be better than what’s out there already and that’s what the study is going to try to find out,” said Frei.

The study will enroll 139 patients at hospitals across the United States and in Canada and Europe.

14
Mar
15

NEW TREATMENT EVIDENCE FOR THE MOST SEVERE STROKES

Written by JNF Medical Advisory Board Member – Dr. Michael Chen of Rush University

More common than ruptured brain aneurysms, and still involving brain blood vessels, is ischemic stroke.  A blockage of a major blood vessel in the brain can cause a range of neurological problems and disabilities depending on what part of the brain is deprived of blood. The severity of the stroke and disability depends on the size and location of the blockage. Fortunately, new evidence from multiple stroke studies published in the New England Journal of Medicine, from the US, Canada, the Netherlands and Australia show convincing, statistically robust evidence that those patients who have these emergent large vessel occlusions (ELVO) within the first few hours after symptom onset, do much better if they undergo an interventional procedure to remove the clot.

Much like the procedure involved with placing endovascular coils or flow-diverters for brain aneurysms, there are also devices that are used within a patient’s arteries that can remove clots. These devices have been in use for over 10 years, and the most recent design iterations such as the stent-triever have shown favorable performance. Performance is measured in how complete blood flow restoration to the previously affected brain region can be achieved.

This treatment is not for every stroke patient. Patients with less severe neurologic deficits such as slight face and arm numbness and weakness without additional symptoms, likely have only a small blood vessel affected and should make a favorable recovery spontaneously. Those patients who do have large blood vessel occlusions sometimes have poor brain vascular reserve and the affected brain undergoes irreversible injury very rapidly (within minutes) would also not benefit from interventional blood flow restoration. It is really those patients who have severe deficits who still have brain tissue that is “holding its breath.” The brain tissue is stunned, but not irreversibly injured yet. Flow restoration in these cases can prevent progression to irreversible injury and restore the function that brain region was responsible for.

Much of our focus now is how to effectively deliver this proven treatment for a population of patients that are in real need for an effective therapy. It’s no use to have a proven therapy but no effective system in which to deliver it. Because time is so critical, well-designed and highly dedicated teams and systems are required to achieve favorable clinical outcomes. Many comprehensive stroke centers are investing resources in creating efficient internal workflows that can coordinate multiple services to function nearly simultaneously. Just as important is shortening the times by which a patient develops a symptom and arrives to the hospital. Stroke awareness, particularly how to recognize severe strokes caused by an ELVO, by first responders may hopefully lead to preferential triage of these patients to comprehensive stroke centers, saving hours that might be spent at a hospital that doesn’t provide these types of therapies.

18
Jan
15

JNF Awards $90,000 in Research Grants

The Joe Niekro Foundation has announced the 2014 Joe Niekro Research Grant recipients.  A total of $90,000 has been awarded by the foundation, which is committed to supporting patients and families, research, treatment and awareness of brain aneurysmsAVMs and hemorrhagic strokes.  “We are thrilled to award these recipients with this critical funding needed to help support the advancements of neurological research,” states JNF Founder, Natalie Niekro.

The first awardee, Barrow Neurological Institute, has received a seed grant in the amount of $50,000 for the study Deconstructing the vascular tangle-A molecular biopsy of cerebral arteriovenous malformations by Dr. Joseph Zabramski and Dr. Yashar Kalani.  This groundbreaking study will aim to understand the pathogenesis of AVM formation and identify signaling pathways involved in vascular development and AVM formation.

JNF Founder Natalie Niekro along with Board of Directors Members (from left to right) Bill Michels, Kimberly Chapman, Gary Simms and Linda Michels present a $50,000 research grant to Drs. Yashar Kalani and Joseph Zabramski.

JNF Founder Natalie Niekro along with Board of Directors Members (from left to right) Bill Michels, Kimberly Chapman, Gary Simms and Linda Michels present a $50,000 research grant to Drs. Yashar Kalani and Joseph Zabramski.

A $20,000 grant will go to the University of Michigan for the project, Intraventrical injection of noncellular fluid from subarachnoid hemorrhage patient leads to ventricular enlargement and periventricular injury, by Dr. Aditya Pandey.  This current project aims to understand the role of human subarachnoid hemorrhage (SAH) non-cellular cerebral spinal fluid (CSF) in causing hydrocephalus and periventricular cellular injury.

The final recipient, the SNIS Foundation who received a $20,000 award for the Joe Niekro Research Grant. This annual grant enables investigators to conduct pilot projects related to brain aneurysms, AVMs or stroke. It is the intention of the grant that the seed data from these projects will indicate feasibility and appropriateness of the research prior to applying for further funding; therefore, emphasis will be placed on research deemed to have the most potential for future funding.

Since inception, the Joe Niekro Foundation has awarded over $500,000 in research funding and has built a patient advocacy network that expands across the globe. The foundation provides education on the causes, risk factorsand treatments of these conditions, while funding the advancement of neurological research.

Click here to view the list of previously funded projects.

For more information about funding opportunities including program guidelines and contacts, visit http://www.joeniekrofoundation.com/research-grants/grant-guidelines/.

01
Sep
14

Don’t be a Chicken!!!

In support of BrDon't be a Chickenain Aneurysm Awareness Month (September), The Joe Niekro Foundation (JNF) encourages you to “Don’t be a Chicken.”

Brave survivors of brain aneurysms/AVMs and hemorrhagic strokes will represent The Joe Niekro Foundation during a month of mini-challenges to bring awareness to the importance of early detection and “Getting Scanned.” Don’t be a Chicken is designed to increase awareness of these devastating conditions by asking survivors, caregivers, friends and families to share their stories in attempt to educate the public on the warning signs and risk factors of a brain aneurysm and what to do if you experience “the worst headache of your life.” Courageous survivors and family members from across the country have come together to educate others on the importance of early detection and will be sharing their stories on the RUChickenJNF You Tube Channel, as well as across the foundation’s social media networks.

Plan to see quite a bit of the campaign’s mascot, “Chuck the Chicken” as the JNF will encourage individuals to make Chuck their Facebook profile picture. Signs of Chuck the Chicken have been created for survivors and supporters to download from the foundation’s website and Facebook page, take their picture with and then upload to social media. Throughout the month, Chuck will introduce new elements of the campaign and new challenges for the followers to participate in.

The Joe Niekro Foundation was founded by Natalie Niekro, daughter of the late knuckleball pitcher Joe Niekro, who lost his life to a brain aneurysm in October 2006. The foundation is committed to supporting patients and aiding in the research, treatment and awareness of Brain Aneurysms, AVMs and Hemorrhagic Strokes. The goal of the JNF is to raise awareness about the risk factors, causes and treatments of these conditions, while helping support the advancement of neurological research.  They provide public education and advocacy, support for patients and families, and develop awareness programs and educational materials for hospitals, clinics and other institutions nationwide.

It is estimated that 6 million people in the US have a brain aneurysm (1 in 50 people). Every eight minutes an aneurysm ruptures; killing 50% of those victims within minutes. Of the remaining half, 50% will suffer a delayed death and those remaining will usually suffer severe brain deficits.

One in every 200-500 people has a brain AVM; a dangerous, complex tangle of abnormal arteries and veins. Often the AVM ruptures and bleeds, causing severe brain deficits and sometimes death. The peak age for AVM hemorrhage is the late teens (age 15-20), but an AVM can rupture at any age.

Hemorrhagic strokes make up about 15% of all strokes, resulting in nearly one quarter of all deaths caused by or related to strokes. Approximately 10-15% of people who have this type of stroke will die before reaching the hospital.

“It’s important that we bring awareness to these silent killers and educate the public on the warning signs and risk factors associated with them. Far too many innocent lives are taken each year as a result of one of these conditions and we are here to help educate others before its too late,” says JNF Founder, Natalie Niekro.

Don’t be a Chicken kicks off September 1st . Follow the results at #RUchicken and #JNF or visit www.joeniekrofoundation.org.

For more information on The Joe Niekro Foundation, contact Natalie Niekro – nniekro@joeniekrofoundation.org.

 

27
Aug
14

Minnesota Twins to Host Brain Aneurysm Awareness Day

In honor of Brain Aneurysm Awareness Month, The Minnesota Twins will pay tribute to one of baseball’s most renowned pitchers and former Minnesota Twins Knuckleballer, Joe Niekro by hosting Brain Aneurysm Awareness Day on September 4th. Niekro spent 22 years in the major leagues, notching 221 wins and still holds the record, with his brother Phil, of the most successful brother combination in major league history, with 539 wins. On October 27, 2006, Joe passed away from a sudden brain aneurysm. Today, his legacy lives on through the Joe Niekro Foundation, committed to supporting patients and aiding in the research, treatment and awareness of Brain Aneurysms, AVMs and Hemorrhagic Strokes. The foundation strives to raise awareness about the risk factors, causes and treatments of these conditions, while helping support the advancement of neurological research.  JNF provides public education and advocacy, support for patients and families, and develops awareness programs and educational materials for hospitals, clinics and other institutions nationwide. Attending the day will be, Founder of The Joe Niekro Foundation, Joe’s daughter, Natalie, representatives from Abbott Northwestern Hospital and Stryker Neurovascular, along with several brain aneurysm/AVM/stroke survivors and family members. The group will be recognized during a special on-field ceremony before the game and will enjoy the game immediately following. An informational booth with literature on these conditions and the foundation will be set up on the main concourse during the game for anyone interested in stopping by.

If you would like to help or find out more about the foundation, visit www.joeniekrofoundation.org.

Natalie Niekro – Founder – The Joe Niekro Foundation – 602-318-1013 nniekro@joeniekrofoundation.org




Archives

September 2018
M T W T F S S
« Sep    
 12
3456789
10111213141516
17181920212223
24252627282930

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 6,096 other followers

Twitter Updates

Error: Twitter did not respond. Please wait a few minutes and refresh this page.

Share this Blog

Share |
Advertisements