Posts Tagged ‘Arteriovenous Malformation

01
Aug
16

JNF Awards $60,000 at 2016 SNIS Annual Meeting

The Joe Niekro Foundation was pleased to award $60,000 in research seed grants at the 2016 SNIS Annual Meeting in Boston this July. Among a pool of thirteen amazing applications, the Grants Review Board selected three to each receive a $20,000 seed grant that advances the study of brain aneurysms or brain arteriovenous malformations. The grants enable investigators to conduct research projects that address a specific hypotheses and generate preliminary data in preparation for major grant applications to corporations, foundations and governmental agencies. Founder of the Joe Niekro Foundation, Natalie Niekro and Treasurer of the SNIS Foundation, Richard Klucznik, MD presented each recipient with their checks.
We applaud all those that applied and look forward to granting additional dollars at the 2017 Annual Meeting in Colorado Springs in July.

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This year’s recipients were:

Christopher Kellner, MD (left) – Fellow, Mount Sinai Hospital – “The Intra-Arterial Delivery of Modified Human Endothelial Progenitor Cells to Treat Cerebral Vasospasm Through the LArginine/NO Pathway in the Human Placenta Flow Model”

Cameron McDougall, MD (right) – Fellow, University of Texas Southwestern – “Next Joe Niekro Research GrantGeneration Bran Arteriovenous Malformation Model”

Alim Mitha, MD – University of Calgary – “Intravenous Mesenchymal Stem Cell Therapy for Aneurysm Formation”

(Dr. Mitha was unable to attend the meeting and therefore not pictured.

Congratulations to Drs. Kellner, McDougall and Mitha from all of us at the Joe Niekro Foundation™!

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11
Oct
15

Get Ready to Pitch Another Great Evening

Chairman, Natalie Niekro, of the 6th Annual Knuckle BallA Pitch for Life, on October 17th, at JW Marriott Desert Ridge, is pleased to announce some of this year’s participating athletes who will be honoring her father and former MLB pitcher, Joe Niekro while raising funds for brain aneurysm, AVM and hemorrhagic stroke research.  Attending and mingling with the guests, to name a few, will be:

  • Vince Coleman – MLB – 1985-1997 – 2x All-Star, NL Rookie of the Year and 6x Stolen Base Leader
  • Tony Phillips – MLB – 1982-1999 – World Series Champion
  • Tim Kempton – NBA – 1986-2000
  • Steven Hunter – NBA – 2001-2011
  • Nick Lowery – NFL -1978-1996
  • Steve Ontiveros – MLB – 1985-2000
  • Brandon Webb – MLB – 2003-2009 – 3x All-Star, NL Cy Young Award, 2x NL Wins Leader
  • Cassie Gannis –Nascar

Since Joe Niekro’s tragic and sudden death in 2006, as a result of a brain aneurysm, his daughter, Natalie established The Joe Niekro Foundation, committed to aiding in the research and treatment of brain aneurysms, AVM’s and hemorrhagic strokes.  The foundation strives to raise awareness about the risk factors, causes and treatments of these conditions, while helping support the advancement of neurological research.

The black-tie evening, appropriately named for the pitch that made Niekro famous, will be emceed by legendary radio personality, Dave Pratt, with Special Host, Actress and Brain Aneurysm Survivor, Tamala Jones will feature a festive reception, silent auction, formal dinner, event program, LIVE auction, musical entertainment and the opportunity to mingle with some of sports greatest legends (plus a few surprises in between).  The gala, being hosted in Phoenix for the first time, is the foundation’s largest event of the year and pays tribute to those that have lost their lives to these fatal conditions, while honoring the survivors who are fighting everyday to recover.

Petrice “TC” Schuttler will be honored as the Joe Niekro Humanitarian of the Year for her outstanding commitment and contributions to the community and Dr. Joseph Zabramski will be recognized as the Joe Niekro Medical Humanitarian of the Year.   Proceeds from the event will benefit the Barrow Neurological Institute.

As many as one in fifteen Americans will develop a cerebral aneurysm or AVM; 10-15% of these individuals will die before reaching the hospital and over 50% will die within the first thirty days after rupture. Of those who survive, over half suffer permanent neurological deficit. For more info, visit www.joeniekrofoundation.com/events/knuckleball.

01
Sep
15

It’s Time to Step Up to the Plate!

Joe Niekro FoundationIn support of Brain Aneurysm Awareness Month, The Joe Niekro Foundation™ (JNF) encourages you to “Step Up to the Plate…and Donate this September.

Step Up to the Plate…and Donate is designed to increase awareness of brain aneurysms and AVMs (Arteriovenous Malformation) through the eyes of survivors, caregivers, friends and families who will be sharing their own stories in attempt to educate the public on the warning signs and risk factors of brain aneurysms and AVMs.

To take the Step Up to the Plate challenge, participants will be directed to the JNF Step Up to the Plate donation page.  Anyone interested in creating their own pledge page, or forming a team where they can share their story with others, provide education to the public and create hope for patients and families across the globe, may also do so.  Funds will benefit brain aneurysm and AVM awareness programs through The Joe Niekro Foundation.

There’s nothing quite as appealing as the sound of the words, “You’ve just won a prize!”  So, to show  support for all efforts, the JNF will be awarding Visa gift cards to the Top 3 earners. First place will receive $750, $350 will go to the 2nd place earner and $100 for 3rd place. *Note, no funds from this campaign will be used for the awarded prizes.

The coin has been tossed, the players are ready and the game has begun so, Step Up to the Plate this month for brain aneurysm and AVM awareness.

It is estimated that 6 million people in the US have a brain aneurysm (1 in 50 people).  Every eighteen minutes an aneurysm ruptures; killing 50% of those victims within minutes. Of the remaining half, 50% will suffer a delayed death and those remaining will usually suffer severe brain deficits.

One in every 200-500 people has a brain AVM; a dangerous, complex tangle of abnormal arteries and veins. Often the AVM ruptures and bleeds, causing severe brain deficits and sometimes death. The peak age for AVM hemorrhage is the late teens (age 15-20), but an AVM can rupture at any age.

“It’s important that we bring awareness to these silent killers and educate the public on the warning signs and risk factors associated with them.  Far too many innocent lives are taken each year as a result of one of these conditions and we are here to help educate others before it’s too late.  Survivors need a platform to share hope with others and we are so fortunate that we are the outlet for them to do so,” says JNF Founder Natalie Niekro.

04
Jun
15

Legends of the Game Coming Together to Support JNF

Two decades of baseball champions will come together on June 11th to host World Series Legends, benefitting The Joe Niekro Foundation (JNF). Members of the 1968 and 1984 World Series Detroit Tigers will be at Motor City Casino, in Detroit, Michigan to support brain aneurysmAVM and hemorrhagic stroke research and awareness.

The evening, emceed by sports broadcaster Eli Zaret, will include a cocktail reception, strolling dinner and culminate with a panel discussion including some of the greatest legends of the game: Al Kaline, Willie Horton, Mickey Lolich, Jack Morris, Alan Trammell and Lou Whitaker. Other Tigers guests will include Rick Leach, Scott Lusader, Dan Petry, Dave Rozema, Pat Sheridan, Jon Warden and Pio DiSalvo.

Tiger fans everywhere are invited to attend. Tickets can be purchased online here.

One Champion who will greatly be missed this year is former Tiger and JNF Chairman of the Board, Dave Bergman. Bergman lost his life this past February and to recognize him and his philanthropic efforts, a tribute will be made in his honor during the dinner. “Both Dave and Joe were great friends of mine and I am very glad to be a part of this event and honor their memory”, says Hall of Fame great Al Kaline.

After former Tiger Joe Niekro’s tragic and sudden death in 2006 as a result of a brain aneurysm, his daughter Natalie established The Joe Niekro Foundation, committed to supporting patients and families, research, treatment and awareness of brain aneurysms, AVM’s and hemorrhagic strokes. The foundation strives to raise awareness about the risk factorscauses and treatments of these conditions, while helping support the advancement of neurological research.

Joe Niekro was one of the approximately 30,000 Americans to experience a brain aneurysm that bursts, usually resulting in sudden death. It is estimated that 6 million people in the US have a brain aneurysm, as many as one in 50 people, and every 18 minutes a brain aneurysm ruptures.

World Series Legends promises to be a memorable event, with some of the greatest names in baseball together in one place. The event begins at 5:30pm with a VIP Tiger Legends cocktail reception for premium ticket holders.

Tickets can be purchased at JoeNiekroFoundation.org or call 602-318-1013.

18
Jan
15

JNF Awards $90,000 in Research Grants

The Joe Niekro Foundation has announced the 2014 Joe Niekro Research Grant recipients.  A total of $90,000 has been awarded by the foundation, which is committed to supporting patients and families, research, treatment and awareness of brain aneurysmsAVMs and hemorrhagic strokes.  “We are thrilled to award these recipients with this critical funding needed to help support the advancements of neurological research,” states JNF Founder, Natalie Niekro.

The first awardee, Barrow Neurological Institute, has received a seed grant in the amount of $50,000 for the study Deconstructing the vascular tangle-A molecular biopsy of cerebral arteriovenous malformations by Dr. Joseph Zabramski and Dr. Yashar Kalani.  This groundbreaking study will aim to understand the pathogenesis of AVM formation and identify signaling pathways involved in vascular development and AVM formation.

JNF Founder Natalie Niekro along with Board of Directors Members (from left to right) Bill Michels, Kimberly Chapman, Gary Simms and Linda Michels present a $50,000 research grant to Drs. Yashar Kalani and Joseph Zabramski.

JNF Founder Natalie Niekro along with Board of Directors Members (from left to right) Bill Michels, Kimberly Chapman, Gary Simms and Linda Michels present a $50,000 research grant to Drs. Yashar Kalani and Joseph Zabramski.

A $20,000 grant will go to the University of Michigan for the project, Intraventrical injection of noncellular fluid from subarachnoid hemorrhage patient leads to ventricular enlargement and periventricular injury, by Dr. Aditya Pandey.  This current project aims to understand the role of human subarachnoid hemorrhage (SAH) non-cellular cerebral spinal fluid (CSF) in causing hydrocephalus and periventricular cellular injury.

The final recipient, the SNIS Foundation who received a $20,000 award for the Joe Niekro Research Grant. This annual grant enables investigators to conduct pilot projects related to brain aneurysms, AVMs or stroke. It is the intention of the grant that the seed data from these projects will indicate feasibility and appropriateness of the research prior to applying for further funding; therefore, emphasis will be placed on research deemed to have the most potential for future funding.

Since inception, the Joe Niekro Foundation has awarded over $500,000 in research funding and has built a patient advocacy network that expands across the globe. The foundation provides education on the causes, risk factorsand treatments of these conditions, while funding the advancement of neurological research.

Click here to view the list of previously funded projects.

For more information about funding opportunities including program guidelines and contacts, visit http://www.joeniekrofoundation.com/research-grants/grant-guidelines/.

18
Oct
12

LIVING WITH A BROKEN BRAIN

I just returned from our monthly Phoenix Support Group meeting and felt compelled to write about the movie we watched called Living with a Broken Brain.  It is a Documentary in which actress Maryam d’Abo (you may remember her as one of James Bond’s  007 Girls), who suffered a brain haemorrhage in 2007, guides you through her personal journey of recovery and meets other survivors of brain injuries.

“I had struggled to describe to my husband and family how I had felt after my stroke which made it difficult for them to understand and relate to how I was feeling and the emotions I was going through. They say that only those that experience similar situations can really relate so it was like a breath of fresh air to watch this film and find not just one but a number of people that had felt the same as I had done. At the time you feel you are in a cage, clawing at the sides to get out and screaming inside in silence because you can’t find the words,” says D’Abo in the film.

Her experience inspired this film to be made with her husband filmmaker Hugh Hudson who witnessed her illness . Maryam leads us on a personal journey of recovery, giving hope to those who are isolated by their condition. The film is about the sufferings and the struggles of the brain injured. Many first-hand stories celebrate man’s life force and his will to survive and bring awareness of an unpredictable condition that is on the rise, an illness that is not seen therefore often misunderstood. The original film soundtrack is written by Vangelis and Mark Knopfler and amongst the many survivors appearing in the documentary are Quincy Jones – music producer, Pat Martino – jazz guitarist, James Fox -novelist , Robert Mccrum – literary editor of the London Observer. Supported by neurosurgeons, neurologists, neuro-psychologists who give their testimony and knowledge.
The film concerns all human beings, dealing with the fragility of the extraordinary brain of which we know surprisingly little.

I recommend families of all stroke, aneurysm and AVM victims spend one hour watching this incredible profound story.  Finally finding the words to describe something you have felt and then knowing you are not alone in feeling it is incredibly empowering.

I am thankful we had the opportunity to watch this amazing film and thank all those that attended for their continued support, commitment and passion to our cause.



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