Posts Tagged ‘Brain Aneurysm Awareness Night

01
Sep
14

Don’t be a Chicken!!!

In support of BrDon't be a Chickenain Aneurysm Awareness Month (September), The Joe Niekro Foundation (JNF) encourages you to “Don’t be a Chicken.”

Brave survivors of brain aneurysms/AVMs and hemorrhagic strokes will represent The Joe Niekro Foundation during a month of mini-challenges to bring awareness to the importance of early detection and “Getting Scanned.” Don’t be a Chicken is designed to increase awareness of these devastating conditions by asking survivors, caregivers, friends and families to share their stories in attempt to educate the public on the warning signs and risk factors of a brain aneurysm and what to do if you experience “the worst headache of your life.” Courageous survivors and family members from across the country have come together to educate others on the importance of early detection and will be sharing their stories on the RUChickenJNF You Tube Channel, as well as across the foundation’s social media networks.

Plan to see quite a bit of the campaign’s mascot, “Chuck the Chicken” as the JNF will encourage individuals to make Chuck their Facebook profile picture. Signs of Chuck the Chicken have been created for survivors and supporters to download from the foundation’s website and Facebook page, take their picture with and then upload to social media. Throughout the month, Chuck will introduce new elements of the campaign and new challenges for the followers to participate in.

The Joe Niekro Foundation was founded by Natalie Niekro, daughter of the late knuckleball pitcher Joe Niekro, who lost his life to a brain aneurysm in October 2006. The foundation is committed to supporting patients and aiding in the research, treatment and awareness of Brain Aneurysms, AVMs and Hemorrhagic Strokes. The goal of the JNF is to raise awareness about the risk factors, causes and treatments of these conditions, while helping support the advancement of neurological research.  They provide public education and advocacy, support for patients and families, and develop awareness programs and educational materials for hospitals, clinics and other institutions nationwide.

It is estimated that 6 million people in the US have a brain aneurysm (1 in 50 people). Every eight minutes an aneurysm ruptures; killing 50% of those victims within minutes. Of the remaining half, 50% will suffer a delayed death and those remaining will usually suffer severe brain deficits.

One in every 200-500 people has a brain AVM; a dangerous, complex tangle of abnormal arteries and veins. Often the AVM ruptures and bleeds, causing severe brain deficits and sometimes death. The peak age for AVM hemorrhage is the late teens (age 15-20), but an AVM can rupture at any age.

Hemorrhagic strokes make up about 15% of all strokes, resulting in nearly one quarter of all deaths caused by or related to strokes. Approximately 10-15% of people who have this type of stroke will die before reaching the hospital.

“It’s important that we bring awareness to these silent killers and educate the public on the warning signs and risk factors associated with them. Far too many innocent lives are taken each year as a result of one of these conditions and we are here to help educate others before its too late,” says JNF Founder, Natalie Niekro.

Don’t be a Chicken kicks off September 1st . Follow the results at #RUchicken and #JNF or visit www.joeniekrofoundation.org.

For more information on The Joe Niekro Foundation, contact Natalie Niekro – nniekro@joeniekrofoundation.org.

 

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27
Aug
14

Minnesota Twins to Host Brain Aneurysm Awareness Day

In honor of Brain Aneurysm Awareness Month, The Minnesota Twins will pay tribute to one of baseball’s most renowned pitchers and former Minnesota Twins Knuckleballer, Joe Niekro by hosting Brain Aneurysm Awareness Day on September 4th. Niekro spent 22 years in the major leagues, notching 221 wins and still holds the record, with his brother Phil, of the most successful brother combination in major league history, with 539 wins. On October 27, 2006, Joe passed away from a sudden brain aneurysm. Today, his legacy lives on through the Joe Niekro Foundation, committed to supporting patients and aiding in the research, treatment and awareness of Brain Aneurysms, AVMs and Hemorrhagic Strokes. The foundation strives to raise awareness about the risk factors, causes and treatments of these conditions, while helping support the advancement of neurological research.  JNF provides public education and advocacy, support for patients and families, and develops awareness programs and educational materials for hospitals, clinics and other institutions nationwide. Attending the day will be, Founder of The Joe Niekro Foundation, Joe’s daughter, Natalie, representatives from Abbott Northwestern Hospital and Stryker Neurovascular, along with several brain aneurysm/AVM/stroke survivors and family members. The group will be recognized during a special on-field ceremony before the game and will enjoy the game immediately following. An informational booth with literature on these conditions and the foundation will be set up on the main concourse during the game for anyone interested in stopping by.

If you would like to help or find out more about the foundation, visit www.joeniekrofoundation.org.

Natalie Niekro – Founder – The Joe Niekro Foundation – 602-318-1013 nniekro@joeniekrofoundation.org

18
Oct
12

LIVING WITH A BROKEN BRAIN

I just returned from our monthly Phoenix Support Group meeting and felt compelled to write about the movie we watched called Living with a Broken Brain.  It is a Documentary in which actress Maryam d’Abo (you may remember her as one of James Bond’s  007 Girls), who suffered a brain haemorrhage in 2007, guides you through her personal journey of recovery and meets other survivors of brain injuries.

“I had struggled to describe to my husband and family how I had felt after my stroke which made it difficult for them to understand and relate to how I was feeling and the emotions I was going through. They say that only those that experience similar situations can really relate so it was like a breath of fresh air to watch this film and find not just one but a number of people that had felt the same as I had done. At the time you feel you are in a cage, clawing at the sides to get out and screaming inside in silence because you can’t find the words,” says D’Abo in the film.

Her experience inspired this film to be made with her husband filmmaker Hugh Hudson who witnessed her illness . Maryam leads us on a personal journey of recovery, giving hope to those who are isolated by their condition. The film is about the sufferings and the struggles of the brain injured. Many first-hand stories celebrate man’s life force and his will to survive and bring awareness of an unpredictable condition that is on the rise, an illness that is not seen therefore often misunderstood. The original film soundtrack is written by Vangelis and Mark Knopfler and amongst the many survivors appearing in the documentary are Quincy Jones – music producer, Pat Martino – jazz guitarist, James Fox -novelist , Robert Mccrum – literary editor of the London Observer. Supported by neurosurgeons, neurologists, neuro-psychologists who give their testimony and knowledge.
The film concerns all human beings, dealing with the fragility of the extraordinary brain of which we know surprisingly little.

I recommend families of all stroke, aneurysm and AVM victims spend one hour watching this incredible profound story.  Finally finding the words to describe something you have felt and then knowing you are not alone in feeling it is incredibly empowering.

I am thankful we had the opportunity to watch this amazing film and thank all those that attended for their continued support, commitment and passion to our cause.
28
Feb
12

Honoring Brain Aneurysm Awareness Week March 12-18th

In 2012, more than 30,000 people in the United States will be affected by a ruptured brain aneurysm.  More than 40% of these aneurysms will prove to be fatal.  As we enter the month of March that will honor Brain Awareness Week March 12-18th, The Joe Niekro Foundation would like to share information about the warning signs of a brain aneurysm.  Research shows that early detection can make a significant difference in the outcome of a brain aneurysm.

Brain Awareness Week will be celebrated from March 12-18, 2012, and will be a global campaign to increase public awareness about the progress and benefits of brain research.  Each year, Brain Awareness Week campaign combines the efforts of universities, hospitals, government agencies, schools, and professional associations in a week-long celebration of the brain.

The Joe Niekro Foundation is committed to providing critical awareness, education, support and research funding to reduce the incidence of brain aneurysm ruptures.  The goal of our organization is to educate people about the dangers of brain aneurysms and save lives by funding vital research and increasing awareness.

Brain aneurysms can affect people of any age and as many as 1 in 15 people have an unruptured brain aneurysm.  Even with today’s advanced nuero-imaging technology, 25% of people are misdiagnosed or receive delayed diagnoses for brain aneurysms.  To ensure individuals receive the appropriate care in an emergency situation, it is important to raise awareness of the warning signs and symptoms.

There are many risk factors that doctors and researchers believe may increase your risk of developing an aneurysm or, if you already have an aneurysm, may increase your risk of it rupturing including smoking, hypertension, drug use, infection, tumors, traumatic head injury and a family history of aneurysms.

Most brain aneurysms cause no symptoms and may only be discovered during tests for another, usually unrelated, condition. In other cases, an unruptured aneurysm will cause problems by pressing on areas within the brain. When this happens, the person may suffer from severe headaches, blurred vision, changes in speech, and neck pain, depending on the areas of the brain that are affected and the severity of the aneurysm.

Aneurysms may burst and bleed into the brain, causing serious complications including hemorrhagic stroke, permanent nerve damage or death. Once it has burst, the aneurysm may burst again and rebleed into the brain, and additional aneurysms may also occur. More commonly, rupture may cause a subarachnoid hemorrhage – bleeding into the space between the skull bone and the brain.

Shirts are available in Mens and Ladies styles, in a variety of colors and sell for $14.95 (includes shipping)

The importance of early detection of these sudden and silent killers is critical which is why The Joe Niekro Foundation has embarked on a national initiative called Wanna Get Lucky?  This t-shirt campaign is designed to educate the public on the importance of early detection. Help us save lives by joining this campaign to spread the word of why it’s important to Get Lucky. All monies raised from t-shirts sales goes directly to aneurysm awareness and education.  So as we enter into this critical month of raising the importance of brain aneurysm awareness, please join us by sporting a Wanna Get Lucky? t-shirt.  The life you save…could very well be your own.

Thank you for your support and continued assistance in helping us defeat these silent killers!

 

19
Oct
11

The Joe Niekro Foundation Announces Newest Medical Advisory Board Member

The Joe Niekro Foundation is thrilled to announce our newest Medical Advisory Board Member, Robert D. Brown, Jr., MD, MPH.  Dr. Brown completed his medical school training at Mayo Medical School, neurology residency at Mayo Clinic and stroke and cerebrovascular disease fellowship at Mayo Clinic.  He also has a Masters of Public Health in epidemiology and clinical trial design.  He is a Consultant in the Department of Neurology, Mayo Clinic, Rochester, MN, Chair, Department of Neurology, and the John T. and Lillian Matthews Professor of Neuroscience, College of Medicine, Mayo Clinic. He is a previous recipient of the Mayo Distinguished Clinician Award, Mayo School of Continuing Medical Education Outstanding Faculty Award, Mayo Individual Award for Excellence and the American Heart Association Stroke Leadership Award.   Dr. Brown has been elected to membership in the American Neurological Association, and is a fellow in the American Academy of Neurology and the Stroke Council of the American Stroke Association.  His research interests include cerebrovascular diseases of all types including intracranial aneurysms, stroke prevention, acute ischemic stroke, intracranial vascular malformations, primary central nervous system vasculitis and the epidemiology of cerebrovascular disorders.  He has authored or co-authored over 170 peer reviewed manuscripts, 30 book chapters, three textbooks on stroke and cerebrovascular diseases, and served as the editor for a comprehensive monograph on clinical neurology.  He has served as principal investigator, and on the executive and/or steering committees for numerous NIH-funded studies, including principal investigator of the International Study of Unruptured Intracranial Aneurysms.

Dr. Brown has been influential in establishing a strong partnership with The Joe Niekro Foundation and Mayo Clinic and we look forward to continuing to raise funds to support brain aneurysm research, treatment and education.  Click here to see Dr. Brown’s appearance in a recent Joe Niekro Foundation PSA.

03
Sep
11

Texas – Here We Come!

On September 13th, The Houston Astros will honor one of baseball’s most renowned pitchers and former Astro Knuckleballer, Joe Niekro.  Niekro spent 22 years in the major leagues, notching 221 wins and still holds the record, with his brother Phil, of the most successful brother combination in major league history, with 539 wins and the record of the winningest pitcher in Houston Astro history. On October 27, 2006, Joe passed away from a sudden brain aneurysm.  Today, his legacy lives on through The Joe Niekro Foundation, committed to the awareness and funding for aneurysm research and treatment.  To honor this knuckleball legend, The Houston Astros will host “Brain Aneurysm Awareness Night” at Minute Maid Park on September 13, 2011. Attending will be, President and Founder of The Joe Niekro Foundation, Joe’s daughter, Natalie, with a special on field ceremony prior to the game. Natalie will be joined by former teammates, Houston alumni, Larry Dierker, Art Howe and Enos Cabell, along with several aneurysm survivors from the Houston area for a special on field ceremony.  From 5:30-3rd Inning, fans can visit The Joe Niekro Foundation booth on
the concourse and receive a Wanna Get Lucky? t-shirt and autograph from these three former Astros in exchange for a minimum donation of $20.  Wanna Get Lucky? is the foundation’s national awareness  campaign to educate people on the importance of early detection. During the game, fans will also be encouraged to participate in a “Text to Give” campaign by texting the word Strikeout to 20222.  By doing so, a $10 donation to The Joe Niekro Foundation will appear on the donor’s cell phone bill.

Click here to watch the exclusive video that will be shown during the game on September 13th.  Come on Houston, join us in the fight and Knuckle Up with us on the 13th.

From Minute Maid, its off to Kingwood, TX for the 1st Annual Joe Niekro Foundation Golf-A-Thon on September 16th at Kingwood Country Club.   Participants can tee-it-up for 18 or 36 holes, all while raising pledges for the holes they complete from donations secured prior to their play.  With Joe Niekro’s jersey being #36, we encourage all to pay tribute to Joe and sign up for a full day of two rounds of 18.  Avid, as well as the novice golfers, will find this day one filled with fun, excitement and lots of laughs.  Grab your clubs and come join the fun as we compete for pledges on the links.

Its not too late to register, so Click Here to get signed up today!

 

18
Jul
11

Brain Aneursym Awareness Night Turner Field…A Survivor’s Success!

Natalie and Phil Niekro accompanied by several Brain Aneurysm Survivors for a special pre-game ceremony.

On July 16th, The Atlanta Braves honored one of baseball’s most renowned pitchers and former Atlanta Braves Knuckleballer, Joe Niekro.  Niekro spent 22 years in the major leagues, notching 221 wins and still holds the record, with his brother Phil, of the most successful brother combination in major league history, with 539 wins.  On October 27, 2006, Joe passed away from a sudden brain aneurysm.  Today, his legacy lives on through the Joe Niekro Foundation, committed to the awareness and funding for aneurysm research and treatment.  To honor this knuckleball legend, The Atlanta Braves hosted “Brain Aneurysm Awareness Night” at Turner Field on July 16, 2011.  President and Founder of The Joe Niekro Foundation, Joe’s daughter, Natalie and Joe’s brother, Hall of Famer Phil Niekro were joined by over 50 aneurysm survivors from the Atlanta area and medical professionals from Emory Hospital for a special pre-game on field ceremony.  From the times the gates opened to game time, fans visited The Joe Niekro Foundation booth in Monument Grove where they received a Wanna Get Lucky?t-shirt and autograph from Phil Niekro for a minimum donation of $20.

Phil Niekro Signing a Wanna Get Lucky? shirt for a very happy fan

Wanna Get Lucky? is the foundation’s national awareness initiative campaign to educate people on the importance of early detection.  In addition, throughout the game, fans were encouraged to participate in a “Text to Give” campaign by texting the word Strikeout to 20222.  By doing so the texter was making a $10 donation to The Joe Niekro Foundation.  Natalie and foundation volunteers sold Wanna Get Lucky? shirts throughout the game, plus gave text donors a commemorative Wanna Get Lucky? stress ball as a thank you for their support.  We are pleased to report that Brain Aneurysm Awareness Night was a great success for The Joe Niekro Foundation and we thank everyone for their tremendous support.

Click here to watch the video shown at Turner Field prior to the on-field ceremony.




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