Posts Tagged ‘hemorrhagic stroke

10
Jan
16

JOE NIEKRO FOUNDATION AWARDS OVER $240,000 TOWARD BRAIN ANEURYSM, AVM AND HEMORRHAGIC STROKE RESEARCH FUNDING

Nationally recognized non-profit, The Joe Niekro Foundation™ has announced the 2015 Joe Niekro Research Grant recipients. A total of $240,000 has been awarded by the foundation, which is committed to supporting patients and families, research, treatment and awareness of brain aneurysms, AVMs and hemorrhagic strokes. “We are honored to be able to collaborate with these amazing recipients and provide them with the critical funding needed to help support the advancements of neurological research,” states JNF Founder, Natalie Niekro.

Barrow Neurological Institute, has received a $160,000 grant for the study Deconstructing the vascular tangle-A molecular biopsy of cerebral arteriovenous malformations, by Joseph Zabramski, MD and Yashar Kalani, MD. This groundbreaking study will aim to understand the pathogenesis of AVM formation and identify signaling pathways involved in vascular development and AVM formation. This is the second grant Barrow has received from The Joe Niekro Foundation™ for this study and provides the funds to cover expenses for the entire 2016 year. “On behalf of all of us at the Barrow, we want to thank you for your appreciation and continued support of this project,” states Dr. Kalani. “We are incredibly grateful to the Joe Niekro Foundation™ for their continued support and ongoing efforts to help make this collaboration a successful one,” claims Joseph Zabramski, MD.

University of Texas has been awarded a $20,224 grant for the project, Application of Machine Learning Techniques to Improve Outcomes after Aneurysmal Subarachnoid Hemorrhage, by Huimahn Alex Choi, MD MS and Jude Savarraj, PhD. The goal of this project is the realization of a machine learning model that will reliably predict the occurrence of delayed cerebral ischemia (DCI) after a Subarachnoid Hemorrhage at least 24 hours before onset, allowing enough time for a meaningful clinical intervention.

A continued partner and collaborator of The Joe Niekro Research Grant, SNIS Foundation was the recipient of a $40,000 grant. This annual grant enables investigators to conduct pilot projects related to brain aneurysms, AVMs or stroke. It is the intention of the grant that the seed data from these projects will indicate feasibility and appropriateness of the research prior to applying for further funding; therefore, emphasis will be placed on research deemed to have the most potential for future funding. “JNF is a wonderful supporter of the SNIS Foundation and we are honored to steward JNF’s resources in innovating and improving care,” says SNIS board member and UCSF Interventional Neuroradiologist, Steven Hetts, MD.

Other 2015 grant recipients included:
Crouse Hospital – Syracuse, NY
St. Joseph’s Hospital – Phoenix, AZ
Child Legacy International – Boerne, TX
Houston Methodist Hospital – Houston, TX

Since inception, the Joe Niekro Foundation has awarded over $1,00,000 in research funding and has built a patient advocacy network that expands across the globe. The foundation provides education on the causes, risk factors and treatments of these conditions, while funding the advancement of neurological research.

Click here to view the list of previously funded projects.

For more information about funding opportunities including program guidelines and contacts, visit http://www.joeniekrofoundation.com/research-grants/grant-guidelines.

 

Advertisements
14
Dec
15

Joe Niekro Foundation Workshop Hits the Mark

JNF shined this weekend at the 1st Annual Facilitators and Administrators workshop. Twenty four JNFMicrovention ambassadors came together for a three day workshop packed with informational, educational and engaging sessions designed to increase the overall knowledge and involvement of our Support Group leaders and hospital partners.

The Joe Niekro Foundation Support Groups and Facebook online forums provide an invaluable resource for brain aneurysm and AVM patients, caregivers and families in the community. Strong facilitation is essential for the sustainability of a support group and the motivational seminar provided the framework to empower our facilitators to be the best leaders they can be.


Me Kim and RobThe group began the weekend with a personal tour of the Microvention Plant where they were able to learn about the latest advancements within the Endovascular industry and had a hands opportunity to witness the coils, stents and flow diverters in the making. Microventions’ founder, Rob Greene wowed the group with a lunch discussion on The History of Coils, while the entire office welcomed JNF to their facilities. Outside of the Microvention tour, the group enjoyed discussions on the various ways to make their group one of the strongest in the country.

Between ice breakers and One Minute Limit challenges, the group shared their successes and learned all that is available to them through the Joe Niekro Foundation™.Team Sparkle

The weekend was truly an opportunity of a lifetime and we are so grateful.  Thanks to all who participated and made it such a memorable time together.
#JNFWorkshop2015.

10
Nov
15

Know the Facts!


 strokeDid you know that strokes affect 1 in 6 males and 1 in 5 females? Stroke is third leading cause of death worldwide and a common cause of disability in adults.

Surprisingly, 80% of strokes are preventable.  Here are a few tips to keep in mind that could just help save you from a stroke!

1) Know your blood pressure: High blood pressure (hypertension) is one of the most common causes of stroke. High blood pressure is a measurement of 140/90 or higher.

2) Check for Heart diseases: Atrial fibrillation (AF) is an irregular heartbeat that changes how your heart works and can cause blood to pool in parts of your heart. This blood can form clots and cause a stroke.smoking

3) If you smoke, STOP! Smoking doubles the risk for stroke.

4) If you drink alcohol, do so in moderation: Heavy drinking can actually increase your risk for stroke.

diabetes-blood-sugar-chart5) Know your cholesterol number: Lowering your cholesterol (a fat-like substance in your blood) may reduce your risk for stroke. high cholesterol can be controlled with diet and exercise; some people may need medicine.

6) If you are diabetic, get your blood sugar level under control.

7) Include exercise in your daily routine: a brisk walk, bicycle ride, swim or yard work – can improve your health and may reduce your stroke risk. Adults should perform moderate physical activities for at least 30 minutes for five or more days a week.

8) Enjoy a lower sodium (salt), lower fat diet: By cutting down on salt and fat in your diet, you may lower your blood pressure and, more importantly, lower your risk for stroke. Try to eat a balanced diet each day, with plenty of fruits, vegetables, whole grains and a mod
erate amount of protein (meat, fish, eggs, milk, nuts, tofu, and some beans).

9) Ask your doctor if you have circulation (blood flow) problems, which increase your stroke risk. If so, work with your doctor to control them.

Knowing your numbers could make all the difference!

numbers

03
Nov
15

B.E. F.A.S.T. – Save a life from Stroke

In culmination of World Stroke Day, we wanted to be sure you had the tools necessary to recognize a stroke and the signs to look for.  Following these easy steps could help save a life!!!!

The B.E. F.A.S.T. guideline helps you remember that timely treatment is the key to saving someone’s life or quality of life.

B – Balance: Is the person experiencing a sudden loss of balance or coordination?

E – Eyes: Is the person having a sudden change in vision or trouble seeing

F – Face: Ask the person to smile. Does one side of the face droop?

A – Arms: Ask the person to raise both arms. Does one arm drift downward?

S – Speech: Ask the person to repeat a simple phrase. Is their speech slurred or strange?

T – Time: If you observe any of these signs, call 9-1-1 immediately.

Strokes cause about one out of every 19 deaths in the U.S. each year, making it the third leading cause of death for women and the fourth leading cause of death for men. Strokes are also a leading cause of serious long-term disability in America.

hemorrhagic-stroke

A stroke occurs when a vessel in the brain is blocked by a blood clot or ruptures, according to the American Stroke Association. About 15 percent of all strokes in the U.S. are hemorrhagic, leaving 85% to be ischemic.

The Centers for Disease Control and Prevention (CDC) says high blood pressure, heart disease, diabetes, cigarette smoking, atrial fibrillation are risk factors for stroke.

The good news, according to the CDC, is that you  can help cut your risk for stroke by:

  • Eating a healthy diet rich in fresh fruits and vegetables and low in sodium and trans fat.
  • Maintaining a healthy weight.
  • Staying physically active each day.
  • Quitting smoking.
  • Consuming alcohol in moderation.
  • Preventing or treating high cholesterol, high blood pressure, or diabetes.

If you think someone has suffered a stroke, call 9-1-1 immediately. Paramedics can begin life-saving treatment on the way to the emergency room.

01
Aug
15

Questions to Ask AFTER Surgery

Now that you are through your surgery and ready for your first post-op appointment, here are a few questions you will want to be sure and ask:

  • What possible side effects should I look for after treatment?
  • What are the signs of infection?
  • What do I do about constipation?
  • What kind of timeframe am I looking at for recovery?
  • Is it possible to completely recover from treatment of a Brain aneurysm/AVM/Stroke?
  • What activities am I allowed to do?
  • What medications am I allowed to take?
  • Am I permitted to drive?
  • Can I drink alcohol?
  • Can I have sex and when?
  • Can I dye my hair?
  • What other types of doctors do you recommend I see? Do I need to schedule an appointment with a Neurologist, Neurophysiologist, Neuropsychiatrist?
  • How can I help myself recover?
  • Who do I call if I have questions about how I am feeling?
  • Will there be any follow-up after treatment?
  • I am nervous about the hardware that will be used to treat my brain aneurysm; if I bump my head will the coils/clips come undone?
  • What is DVT (deep vein thrombosis)? What are the symptoms?
  • Am I allowed to leave the country?
  • Can I fly in an airplane?
  • Are there support groups available?

Remember that no question is a bad question – so ask whatever you need to put your mind at ease, comfort your heart and walk away feeling some sense of relief.

16
Jul
15

The Knuckle Ball…A Pitch for Life is Heading to Phoenix

Joe Niekro Foundation Knuckle Ball

On October 17th, 2015, athletes from all over the country will come together, in association with The Joe Niekro Foundation and The Society of Neuro-Interventional Surgery Foundation, to support brain aneurysmAVM and hemorrhagic stroke research and awareness, for the 6thAnnual Knuckle Ball…A Pitch for Life at the JW Marriott Resort in Phoenix, AZ.

The black-tie evening, hosted by actress and brain aneurysm survivor, Tamala Jones, will feature a festive reception, silent auction, formal dinner, event program and LIVE auction (plus a few surprises in between).  The gala is the foundation’s largest event of the year and pays tribute to those that have lost their lives to these fatal conditions, while honoring the survivors who are fighting everyday to recover.

We are proud to announce that Petrice “TC” Schuttler will be honored as the Joe Niekro Humanitarian of the Year for her outstanding commitment and contributions to the Phoenix community.  Petrice has devoted her life to improving the lives of others and we are incredibly excited to present her with this year’s award.  The Joe Niekro Foundation Medical Humanitarian of the Year recipient, Joseph Zabramski, MD will be recognized for his research and continued advancements and treatment studies of brain aneurysms, AVMs and hemorrhagic strokes.

Since her father’s tragic and sudden death as a result of a brain aneurysm, Natalie Niekro established The Joe Niekro Foundation, committed to supporting patients and families, research, and treatment of brain aneurysms, AVMs and hemorrhagic strokes. We provide education on the risk factors, causes and treatments of these conditions, while funding the advancement of neurological research.

We would be honored to have you join our efforts and look forward to welcoming you at the 6th Annual Knuckle Ball…A Pitch for Life.

For tickets and package information, visit www.joeniekrofoundation.com/events/knuckleball.

04
Jun
15

Legends of the Game Coming Together to Support JNF

Two decades of baseball champions will come together on June 11th to host World Series Legends, benefitting The Joe Niekro Foundation (JNF). Members of the 1968 and 1984 World Series Detroit Tigers will be at Motor City Casino, in Detroit, Michigan to support brain aneurysmAVM and hemorrhagic stroke research and awareness.

The evening, emceed by sports broadcaster Eli Zaret, will include a cocktail reception, strolling dinner and culminate with a panel discussion including some of the greatest legends of the game: Al Kaline, Willie Horton, Mickey Lolich, Jack Morris, Alan Trammell and Lou Whitaker. Other Tigers guests will include Rick Leach, Scott Lusader, Dan Petry, Dave Rozema, Pat Sheridan, Jon Warden and Pio DiSalvo.

Tiger fans everywhere are invited to attend. Tickets can be purchased online here.

One Champion who will greatly be missed this year is former Tiger and JNF Chairman of the Board, Dave Bergman. Bergman lost his life this past February and to recognize him and his philanthropic efforts, a tribute will be made in his honor during the dinner. “Both Dave and Joe were great friends of mine and I am very glad to be a part of this event and honor their memory”, says Hall of Fame great Al Kaline.

After former Tiger Joe Niekro’s tragic and sudden death in 2006 as a result of a brain aneurysm, his daughter Natalie established The Joe Niekro Foundation, committed to supporting patients and families, research, treatment and awareness of brain aneurysms, AVM’s and hemorrhagic strokes. The foundation strives to raise awareness about the risk factorscauses and treatments of these conditions, while helping support the advancement of neurological research.

Joe Niekro was one of the approximately 30,000 Americans to experience a brain aneurysm that bursts, usually resulting in sudden death. It is estimated that 6 million people in the US have a brain aneurysm, as many as one in 50 people, and every 18 minutes a brain aneurysm ruptures.

World Series Legends promises to be a memorable event, with some of the greatest names in baseball together in one place. The event begins at 5:30pm with a VIP Tiger Legends cocktail reception for premium ticket holders.

Tickets can be purchased at JoeNiekroFoundation.org or call 602-318-1013.




Archives

August 2018
M T W T F S S
« Sep    
 12345
6789101112
13141516171819
20212223242526
2728293031  

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 6,096 other followers

Twitter Updates

Error: Twitter did not respond. Please wait a few minutes and refresh this page.

Share this Blog

Share |
Advertisements